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    Last Updated: 01/09/2026

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    MediFind found 67 doctor with experience in Neurofibromatosis Type 1 (NF1) near Saint Paul, MN. Of these, 21 are Experienced and 1 are Elite.

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    LocationClose
    67 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (7.2 miles away)
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Pediatric Cardiology
      Pediatric Cardiology

      University Of Minnesota Medical Center Fairview Riverside

      2450 Riverside Ave, 
      Minneapolis, MN 
       (7.2 miles away)
      Languages Spoken:
      English

      Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Wiedemann-Steiner Syndrome.

      Group Health Plan Inc

      640 Jackson St, 
      Saint Paul, MN 
       (0.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Christian Ogilvie is an Orthopedics provider in Saint Paul, Minnesota. Dr. Ogilvie is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Bone Tumor, Epithelioid Sarcoma, Rhabdomyosarcoma Embryonal, Hip Replacement, and Knee Replacement.

      Learn about our expert tiers
      Plastic Surgery
      Plastic Surgery
      200 University Ave E, 
      Saint Paul, MN 
       (0.4 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Robert Dempsey is a Plastic Surgeon in Saint Paul, Minnesota. His top areas of expertise are Metopic Ridge, Craniosynostosis, Goldenhar Disease, Lambdoid Synostosis, and Osteotomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
       (0.9 miles away)
      Languages Spoken:
      English

      Tenner Guillaume is an Orthopedics provider in Saint Paul, Minnesota. Dr. Guillaume is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Scoliosis, Kyphosis, Koolen De Vries Syndrome, Spinal Fusion, and Gastrostomy.

      Neurosurgery
      Neurosurgery

      Allina Health System

      280 Smith Ave N, Suite 600, 
      Saint Paul, MN 
       (1.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Meysam Kebriaei is a Neurosurgery provider in Saint Paul, Minnesota. Dr. Kebriaei is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cerebellum Agenesis Hydrocephaly, Brain Aneurysm, Meningocele, Awake Craniotomy, and Posterior Fossa Decompression.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      347 Smith Ave N, 
      Saint Paul, MN 
       (1.2 miles away)
      Languages Spoken:
      English

      Nancy Mendelsohn is a Medical Genetics specialist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Mendelsohn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Cockayne Syndrome, and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

      Nurse Practitioner
      Nurse Practitioner
      347 Smith Ave N, Childrens Specialty Clinic-genetics-stpl, 
      Saint Paul, MN 
       (1.2 miles away)
      Languages Spoken:
      English

      Elizabeth Siqveland is a Nurse Practitioner in Saint Paul, Minnesota. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Pediatric Cardiology
      Pediatric Cardiology

      University Of Minnesota Medical Center Fairview Riverside

      2450 Riverside Ave, 
      Minneapolis, MN 
       (7.2 miles away)
      Languages Spoken:
      English

      Shanthi Sivanandam is a Pediatric Cardiologist in Minneapolis, Minnesota. Her top areas of expertise are Coarctation of the Aorta, Isthmian Coarctation, Congenital Heart Disease (CHD), and Cor Triatriatum.

      Pediatric Cardiology
      Pediatric Cardiology

      University Of Minnesota Medical Center Fairview Riverside

      2450 Riverside Ave, 
      Minneapolis, MN 
       (7.2 miles away)
      Languages Spoken:
      English

      Stacie Knutson is a Pediatric Cardiologist in Minneapolis, Minnesota. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Ventricular Septal Defects, Isthmian Coarctation, and Coarctation of the Aorta.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery

      Fairview Express Care

      909 Fulton St Se, Suite 4 392, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English

      M Choudry is a Plastic Surgeon in Minneapolis, Minnesota. Dr. Choudry is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Breast Enlargement In Males, Bazex Syndrome, Stiff Skin Syndrome, and Acrogeria, Gottron Type.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Fairview Express Care

      909 Fulton St Se, Suite 4 392, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sheilagh Maguiness is a Dermatologist in Minneapolis, Minnesota. Dr. Maguiness is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Kerion Celsi, Hemangioma, Familial Multiple Nevi Flammei, and Stork Bite. Dr. Maguiness is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Fairview Express Care

      909 Fulton St Se, Suite 4 392, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Hunt is a Neurosurgery provider in Minneapolis, Minnesota. Dr. Hunt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Metastatic Brain Tumor, Awake Craniotomy, and Osteotomy.

      Nurse Practitioner
      Nurse Practitioner

      University Of Minnesota Health Clinics And Surgery Center Inc

      909 Fulton St Se, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ludmila Johnson is a Nurse Practitioner in Minneapolis, Minnesota. Ms. Johnson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Fairview Express Care

      909 Fulton St Se, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English

      Samuel Luchsinger is a Radiologist in Minneapolis, Minnesota. Dr. Luchsinger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fibrosarcoma, Rhabdomyosarcoma Embryonal, Myxoid Liposarcoma, and Epithelioid Sarcoma.

      Radiology
      Radiology

      University Of Minnesota Health Clinics And Surgery Center Inc

      909 Fulton St Se, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English

      Zuzan Cayci is a Radiologist in Minneapolis, Minnesota. Dr. Cayci is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Mast Cell Activation Syndrome (MCAS), Primary Lymphoma of the Brain, Neuroendocrine Tumor, and Tissue Biopsy.

      Plastic Surgery | Hand Surgery
      Plastic Surgery | Hand Surgery

      Fairview Express Care

      909 Fulton St Se, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Thomas Suszynski is a Plastic Surgeon and a Hand Surgeon in Minneapolis, Minnesota. Dr. Suszynski is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Congenital Generalized Lipodystrophy, Familial Partial Lipodystrophy, Breast Enlargement In Males, Islet Cell Transplantation, and Pancreatectomy.

      Dermatology
      Dermatology

      University Of Minnesota Health Clinics And Surgery Center Inc

      909 Fulton St Se, 
      Minneapolis, MN 
       (6.7 miles away)
      Languages Spoken:
      English

      Kevin Gaddis is a Dermatologist in Minneapolis, Minnesota. His top areas of expertise are Lymphocytic Infiltrate of Jessner, Melanoma, Basal Cell Skin Cancer, and Giant Congenital Melanocytic Nevus.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Fairview Express Care

      717 Delaware St Se, Suite 340, 
      Minneapolis, MN 
       (6.9 miles away)
      Languages Spoken:
      English

      Collin Mcclelland is an Ophthalmologist in Minneapolis, Minnesota. Dr. Mcclelland is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Papilledema, Strabismus, Optic Neuritis, Esotropia, and Vitrectomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Fairview Express Care

      717 Delaware St Se, Suite 340, 
      Minneapolis, MN 
       (6.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Raymond Areaux is an Ophthalmologist in Minneapolis, Minnesota. Dr. Areaux has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Esotropia, Strabismus, Ectropion, Trabeculectomy, and Iridectomy.

      Showing 1-20 of 67

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Saint Paul, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Saint Paul, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Saint Paul, MN?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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