The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Saint Paul, MN

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 68 doctor with experience in Neurofibromatosis Type 1 (NF1) near Saint Paul, MN. Of these, 21 are Experienced and 1 are Elite.

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68 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    Christopher Moertel is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

    Pediatric Cardiology
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist practicing medicine in Minneapolis, Minnesota. Dr. Lohr is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Cornelia De Lange Syndrome.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    HealthPartners Cancer Center At Regions Hospital

    640 Jackson St, 
    Saint Paul, MN 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kester Phillips is a Neurologist practicing medicine in Saint Paul, Minnesota. Dr. Phillips is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Astrocytoma, Glioblastoma, and Glioma. Dr. Phillips is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Orthopedics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Tenner Guillaume is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Guillaume is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Scoliosis, CHARGE Syndrome, Wildervanck Syndrome, Spinal Fusion, and Gastrostomy.

    Plastic Surgery
    Plastic Surgery

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Robert Dempsey is a Plastic Surgeon practicing medicine in Saint Paul, Minnesota. Dr. Dempsey is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Metopic Ridge, Craniosynostosis, Goldenhar Disease, Lambdoid Synostosis, and Osteotomy.

    HealthPartners Specialty Center - Orthopedics & Sports Medicine

    435 Phalen Blvd, 
    Saint Paul, MN 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Christian Ogilvie is an Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Ogilvie is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma Embryonal, Epithelioid Sarcoma, Undifferentiated Pleomorphic Sarcoma, Hip Replacement, and Knee Replacement. Dr. Ogilvie is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    347 Smith Ave N, 
    Saint Paul, MN 
     (1.2 miles away)
    Languages Spoken:
    English

    Nancy Mendelsohn is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Mendelsohn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Cockayne Syndrome, and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

    Neurosurgery
    Neurosurgery

    Office

    347 Smith Ave N Ste 301, 
    Saint Paul, MN 
     (2.1 miles away)
    Languages Spoken:
    English

    Meysam Kebriaei is a Neurosurgery provider practicing medicine in Saint Paul, Minnesota. Dr. Kebriaei is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cerebellum Agenesis Hydrocephaly, Brain Aneurysm, Meningocele, Awake Craniotomy, and Posterior Fossa Decompression.

    Nurse Practitioner
    Nurse Practitioner

    Office

    347 Smith Ave N Ste 401-404, 
    Saint Paul, MN 
     (2.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Amy Beckstrom is a Nurse Practitioner practicing medicine in Saint Paul, Minnesota. Ms. Beckstrom is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), Cantu Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Hemi 3 Syndrome.

    Office

    347 Smith Ave N Ste 203-205, 
    Saint Paul, MN 
     (2.1 miles away)
    Languages Spoken:
    English

    Elizabeth Siqveland is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Siqveland is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    Suburban Imaging LLC

    2355 Highway 36 W Ste 100, 
    Roseville, MN 
     (5.0 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Mehmet Gencturk is a Neuroradiologist practicing medicine in Roseville, Minnesota. He has been practicing medicine for over 18 years. Dr. Gencturk is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Stroke, CAPOS Syndrome, Meningioma, and Relapsing Multiple Sclerosis (RMS).

    Suburban Imaging LLC

    2355 Highway 36 W Ste 100, 
    Roseville, MN 
     (5.0 miles away)
    Languages Spoken:
    English

    Brian Flemming is a Radiologist practicing medicine in Roseville, Minnesota. Dr. Flemming is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ascites, Visceromegaly, Progressive Familial Intrahepatic Cholestasis Type 3, and Progressive Familial Intrahepatic Cholestasis Type 2.

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
     (6.7 miles away)
    Languages Spoken:
    English

    Samuel Luchsinger is a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Luchsinger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Fibrosarcoma, Rhabdomyosarcoma Embryonal, Myxoid Liposarcoma, and Epithelioid Sarcoma.

    Neuroradiology
    Neuroradiology

    University Of Minnesota Medical Center-East Bank

    500 Harvard St SE, 
    Minneapolis, MN 
     (7.0 miles away)
    Languages Spoken:
    English

    Mark Folkertsma is a Neuroradiologist practicing medicine in Minneapolis, Minnesota. Dr. Folkertsma is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Optic Glioma, Stroke, Prolactinoma, and Relapsing Multiple Sclerosis (RMS).

    Neuroradiology
    Neuroradiology

    Office

    2021 6th St SE, 
    Minneapolis, MN 
     (7.1 miles away)
    Languages Spoken:
    English

    Zuzan Cayci is a Neuroradiologist practicing medicine in Minneapolis, Minnesota. Dr. Cayci is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Primary Lymphoma of the Brain, Neuroendocrine Tumor, Mast Cell Activation Syndrome (MCAS), and Tissue Biopsy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (7.2 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Can Ozutemiz is a Neuroradiologist practicing medicine in Minneapolis, Minnesota. He has been practicing medicine for over 18 years. Dr. Ozutemiz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Lymphofollicular Hyperplasia, CACH Syndrome, Hereditary Retinoblastoma, and Myxoid Liposarcoma.

    Neuroradiology
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    Frederick Ott is a Neuroradiologist practicing medicine in Minneapolis, Minnesota. Dr. Ott is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses CAPOS Syndrome, Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, and Prolactinoma.

    Neuroradiology
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist practicing medicine in Minneapolis, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    Benjamin Spilseth is a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Spilseth is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Visceromegaly, Collapsed Lung, and Islet Cell Transplantation.

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    Daniel Steinberger is a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Steinberger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Myxoid Liposarcoma, Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), and Gastrostomy.

    Showing 1-20 of 68

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Saint Paul, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Saint Paul, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Saint Paul, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Saint Paul, MN?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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